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Help my husband Fight ALS/Lou Gehrig's disease

We have known many of you for years, some as far back as '95 when we started out on the web as the internet's first vintage clothing store.

While we've grown, we're a close-knit team of about 8 people, working out of a modest shop building on our rural property in a small Oregon town of just 300 people. We're still doing what we love to do, thanks to loyal customers like you.


Jen & Rob w/ kids Kyle (4), Korina (6)

In September 2007, my husband Rob was diagnosed with ALS, known more commonly as Lou Gehrig's disease. Rob retired from his job of 8 years on our daughter's sixth birthday in October of that year.

We are now working to raise money for the ALS Association to fight ALS, and most important to us, raise desperately needed funds for patient services for this devastating disease. Please join us.

DONATE NOW - Add your name to the list of Rob's supporters.


About ALS/Lou Gherig's disease

  • ALS results in gradual total paralysis and death via respiratory failure.
  • 50% of those with ALS live fewer than 3 years after diagnosis.
  • 20% live more than 5 years.
  • 10% live more than 10 years.
  • There is no cure or effective treatment for ALS

  • About my husband's ALS Association team

    Rob is supported by the staff at the ALS Association in Oregon/SW Washington in his journey with ALS/Lou Gehrig's disease.

    Patient Services: Our local ALS Association serves nearly 300 people and families living with ALS, including our own. The ALS Association has helped my husband to obtain equipment, navigate complex social security and medicare issues, and connect with others affected by ALS.

    Life Support in-home care: in later stages, living with ALS requires someone to do everything for you. Living on a ventilator for breathing support and a feeding tube for nutrition requires 24/7 specialized in home care at a cost of around $100,000 a year in our state. The ALS Association in our state needs additional funding to pilot an in-home care project to begin to fill the total lack of paid in-home care available to most people with ALS.

    The ALS Association makes public policy changes happen. The ALS Association was key in bringing about fundamental changes to the way Medicare Benefits are delivered to those with ALS. If Rob had been diagnosed with ALS just a few years ago, he would have had to wait at least two years before receiving Medicare coverage.

    In 2000, the President signed into law The ALS Treatment and Assistance Act (HR 353), legislation waiving the two-year Medicare waiting period for SSDI-eligible individuals with ALS.


    More is needed NOW

    Our local ALS Association needs funds to support an additional social worker. Just one social worker serves the our sizeable metropolitan area. In addition to another social worker, we had hoped our ALS Association would be able to hire an in-home care coordinator to begin a pilot proram to assist with in-home care needs earlier this year, but were unable to do so due to lack of funds.

    I want in-home care help to be available by the time my husband needs it. Your donation will help to make this happen.


    Thank you for your thoughts & warm wishes,

    Jennifer Chadwick
    RustyZipper.Com owner

    DONATE NOW - Add your name to the list of Rob's supporters.

    Other ways you can help:

  • Do you know someone else affected by ALS? please put them in touch with us.
  • Celebrities & Fashion designers: We are launching a celebrity charity auction on eBay givingworks. To join our other celebrity customers in donating items for the auction, please contact jen@rustyzipper.com
  • Watch our friend and filmmaker Patrick O'Brien as he documents his journey with ALS. Watch clips from Patrick's Movie, "Everything Will Be Okay", then contribute to help him finish the film.
  • Help people with ALS in your area: Donate to ALS Guardian Angels or visit ALS.Needlist.org
  • Join people with ALS in an upcoming fundraising walk (join a walk team, get your company to join, sponsor someone who is walking). More info
  • If you are near Salem or Portland, Oregon, walk with Rob & Jen and others raising money to fight ALS in September's Walk to Defeat ALS. Contact Rob at rob.chadwick@gmail.com for info.
  • If you have other ideas for fundraising activities, let us know!



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